Pediatrisk lupus - barnSLE - Vad \u00e4r SLE sjukdom? - Lupusmammans SLE blogg<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lupusmamman.se\/blogg\/pediatrisk-lupus-barnsle-2\/\" \/>\n<meta property=\"og:locale\" content=\"sv_SE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Pediatrisk lupus - barnSLE - Vad \u00e4r SLE sjukdom? - Lupusmammans SLE blogg\" \/>\n<meta property=\"og:description\" content=\"Barn som f\u00e5r SLE innan 15 \u00e5rs \u00e5lder uppm\u00e4rksammas inte i studier eller i media \u00f6ver huvud taget, vilket g\u00f6r mig frustrerad milt sagt. Det finns medvetenhet kring t ex m\u00e4n med SLE, \u00e4ven om det ocks\u00e5 \u00e4r j\u00e4tteovanligt och allts\u00e5 informeras om extremt lite. 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Barn som f\u00e5r SLE innan 15 \u00e5rs \u00e5lder uppm\u00e4rksammas inte i studier eller i media \u00f6ver huvud taget<\/strong>, vilket g\u00f6r mig frustrerad milt sagt. Det finns medvetenhet kring t ex m\u00e4n med SLE, <\/em>\u00e4ven om det ocks\u00e5 \u00e4r j\u00e4tteovanligt och allts\u00e5 informeras om extremt lite. Men jag har inte p\u00e5 17 \u00e5r sett n\u00e5got som p\u00e5minner om oss. Alva. Hennes form av SLE. Hur det h\u00e4nger med hela livet g\u00e4llande t ex myndigheter, v\u00e5rd, socialt, ekonomiskt, ja allt! Finns det ingen medvetenhet ens d\u00e4r, hur ska det n\u00e5gonsin bli b\u00e4ttre? Det \u00e4r skamligt hur hon behandlas i m\u00e5nga instanser. Jag sk\u00e4ms som mamma. <\/p>\n\n\n\n

https:\/\/www.childrenshospital.org\/conditions\/lupus<\/a><\/p>\n\n\n\n

https:\/\/www.chop.edu\/conditions-diseases\/pediatric-lupus<\/a><\/p>\n\n\n\n

https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC3348509\/<\/a><\/p>\n\n\n\n