Att f\u00e5 diagnos som barn - Vad \u00e4r SLE sjukdom? - Lupusmammans SLE blogg<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lupusmamman.se\/blogg\/att-fa-diagnos-som-barn\/\" \/>\n<meta property=\"og:locale\" content=\"sv_SE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Att f\u00e5 diagnos som barn - Vad \u00e4r SLE sjukdom? - Lupusmammans SLE blogg\" \/>\n<meta property=\"og:description\" content=\"Har s\u00e5klart varit tuffare ur alla synvinklar, mot om hon f\u00e5tt det senare i livet, de 2 mest uppenbara: Du m\u00e5ste \u00e4ta m\u00e5nga mediciner med sv\u00e5ra biverkningar m\u00e5nga \u00e5r l\u00e4ngre \u00e4n om du f\u00e5r diagnos senare i livet, (efter pubertet eller \u00e4nnu senare, efter att du f\u00e5tt barn.). 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Har s\u00e5klart varit tuffare ur alla synvinklar, mot om hon f\u00e5tt det senare i livet, de 2 mest uppenbara:<\/p>\n\n\n\n

Du m\u00e5ste \u00e4ta m\u00e5nga mediciner med sv\u00e5ra biverkningar m\u00e5nga \u00e5r l\u00e4ngre<\/em> \u00e4n om du f\u00e5r diagnos senare i livet, (efter pubertet eller \u00e4nnu senare, efter att du f\u00e5tt barn.).<\/li>
Den psykosociala biten, \u00e4ndrat utseende och m\u00e5nga \u00e5rs f\u00f6rsenad pubertet i en \u00e5lder som \u00e4r k\u00e4nslig och sv\u00e5r \u00e4ven utan<\/strong> SLE.<\/li><\/ol>\n\n\n\n
Det finns mycket att bli uppr\u00f6rd och frustrerad \u00f6ver dessa tider, d\u00e4rav \u201dradioskuggan\u201d, som m\u00e5nga som k\u00e4nner mig vet kommer, n\u00e4r det blir f\u00f6r mycket i livet. Detta \u00e4r \u00e4nd\u00e5 viktigt att f\u00f6rmedla.<\/p>\n\n\n\n
Det positiva, trots SLE-diagnos som 10-\u00e5ring \u00e4r att hon alltid kommer igen efter alla bakslag (medicinbiverkningar, symptom, skol- och jobb-problem, you name it), allts\u00e5 envist k\u00e4mpar vidare och f\u00f6rs\u00f6ker ha dr\u00f6mmar hela tiden. Som hon sa f\u00f6r m\u00e5nga \u00e5r sen; \u201dingen gillar en sjuk och jag har inget val\u201d. Hon hade redan som 10-12-\u00e5ring erfarenheter som m\u00e5nga vuxna aldrig f\u00e5r, utan hon k\u00f6r p\u00e5 med livet som l\u00e5tsasfrisk.<\/p>\n\n\n\n
Det enda positiva med att ens dotter f\u00e5r en s\u00e5 ovanlig diagnos, f\u00f6r min<\/em> del, \u00e4r att ha f\u00e5tt tr\u00e4ffa Anders och teamet p\u00e5 barnreuma. Hans empati och klokhet allts\u00e5… obeskrivlig. F\u00f6r alltid tacksam \u2665\ufe0f <\/p>\n\n\n\n
$\"\"$ <\/figure>\n","protected":false},"excerpt":{"rendered":"
Har s\u00e5klart varit tuffare ur alla synvinklar, mot om hon f\u00e5tt det senare i livet, de 2 mest uppenbara: Du m\u00e5ste \u00e4ta m\u00e5nga mediciner med sv\u00e5ra biverkningar m\u00e5nga \u00e5r l\u00e4ngre \u00e4n om du f\u00e5r diagnos senare i livet, (efter pubertet eller \u00e4nnu senare, efter att du f\u00e5tt barn.). Den psykosociala biten, \u00e4ndrat utseende och m\u00e5nga […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"jetpack_publicize_message":"","jetpack_is_tweetstorm":false,"jetpack_publicize_feature_enabled":true},"categories":[835,1012,811,33,1011,20,21,24,25],"tags":[],"jetpack_publicize_connections":[],"yoast_head":"\nAtt f\u00e5 diagnos som barn - Vad \u00e4r SLE sjukdom? - Lupusmammans SLE blogg<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lupusmamman.se\/blogg\/att-fa-diagnos-som-barn\/\" \/>\n<meta property=\"og:locale\" content=\"sv_SE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Att f\u00e5 diagnos som barn - Vad \u00e4r SLE sjukdom? - Lupusmammans SLE blogg\" \/>\n<meta property=\"og:description\" content=\"Har s\u00e5klart varit tuffare ur alla synvinklar, mot om hon f\u00e5tt det senare i livet, de 2 mest uppenbara: Du m\u00e5ste \u00e4ta m\u00e5nga mediciner med sv\u00e5ra biverkningar m\u00e5nga \u00e5r l\u00e4ngre \u00e4n om du f\u00e5r diagnos senare i livet, (efter pubertet eller \u00e4nnu senare, efter att du f\u00e5tt barn.). 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