Hej fredag! - Vad \u00e4r SLE sjukdom? - Lupusmammans SLE blogg<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lupusmamman.se\/blogg\/hej-fredag\/\" \/>\n<meta property=\"og:locale\" content=\"sv_SE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Hej fredag! - Vad \u00e4r SLE sjukdom? - Lupusmammans SLE blogg\" \/>\n<meta property=\"og:description\" content=\"Vissa dagar allts\u00e5, s\u00e5 blir frustrationen f\u00f6r stor. Jag klarar mycket och f\u00f6rtr\u00e4nger mer och mer ”jobbigt” senaste \u00e5ren (det verkar vara melodin), men ibland rinner det liksom \u00f6ver. 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Warning: The magic method GAINWP_Manager::__wakeup() must have public visibility in /customers/0/7/0/lupusmamman.se/httpd.www/wp-content/plugins/ga-in/gainwp.php on line 78 Warning: Cannot modify header information - headers already sent by (output started at /customers/0/7/0/lupusmamman.se/httpd.www/wp-content/plugins/ga-in/gainwp.php:78) in /customers/0/7/0/lupusmamman.se/httpd.www/wp-includes/rest-api/class-wp-rest-server.php on line 1723 Warning: Cannot modify header information - headers already sent by (output started at /customers/0/7/0/lupusmamman.se/httpd.www/wp-content/plugins/ga-in/gainwp.php:78) in /customers/0/7/0/lupusmamman.se/httpd.www/wp-includes/rest-api/class-wp-rest-server.php on line 1723 Warning: Cannot modify header information - headers already sent by (output started at /customers/0/7/0/lupusmamman.se/httpd.www/wp-content/plugins/ga-in/gainwp.php:78) in /customers/0/7/0/lupusmamman.se/httpd.www/wp-includes/rest-api/class-wp-rest-server.php on line 1723 Warning: Cannot modify header information - headers already sent by (output started at /customers/0/7/0/lupusmamman.se/httpd.www/wp-content/plugins/ga-in/gainwp.php:78) in /customers/0/7/0/lupusmamman.se/httpd.www/wp-includes/rest-api/class-wp-rest-server.php on line 1723 Warning: Cannot modify header information - headers already sent by (output started at /customers/0/7/0/lupusmamman.se/httpd.www/wp-content/plugins/ga-in/gainwp.php:78) in /customers/0/7/0/lupusmamman.se/httpd.www/wp-includes/rest-api/class-wp-rest-server.php on line 1723 Warning: Cannot modify header information - headers already sent by (output started at /customers/0/7/0/lupusmamman.se/httpd.www/wp-content/plugins/ga-in/gainwp.php:78) in /customers/0/7/0/lupusmamman.se/httpd.www/wp-includes/rest-api/class-wp-rest-server.php on line 1723 Warning: Cannot modify header information - headers already sent by (output started at /customers/0/7/0/lupusmamman.se/httpd.www/wp-content/plugins/ga-in/gainwp.php:78) in /customers/0/7/0/lupusmamman.se/httpd.www/wp-includes/rest-api/class-wp-rest-server.php on line 1723 Warning: Cannot modify header information - headers already sent by (output started at /customers/0/7/0/lupusmamman.se/httpd.www/wp-content/plugins/ga-in/gainwp.php:78) in /customers/0/7/0/lupusmamman.se/httpd.www/wp-includes/rest-api/class-wp-rest-server.php on line 1723 {"id":6496,"date":"2020-03-06T09:42:12","date_gmt":"2020-03-06T08:42:12","guid":{"rendered":"https:\/\/lupusmamman.se\/?p=6496"},"modified":"2020-03-06T10:38:42","modified_gmt":"2020-03-06T09:38:42","slug":"hej-fredag","status":"publish","type":"post","link":"https:\/\/lupusmamman.se\/blogg\/hej-fredag\/","title":{"rendered":"Hej fredag!"},"content":{"rendered":"\n

Vissa dagar allts\u00e5, s\u00e5 blir frustrationen f\u00f6r stor. Jag klarar mycket och f\u00f6rtr\u00e4nger mer och mer ”jobbigt” senaste \u00e5ren (det verkar vara melodin), men ibland rinner det liksom \u00f6ver. Det kan vara t ex att jag ser ytterligare ett barn (med barn menar jag oftast f\u00f6re <\/em>pubertet) som \u00e4r j\u00e4ttesjuk eller d\u00f6r, f\u00f6retr\u00e4desvis i USA, men det har <\/em>h\u00e4nt i Sverige.<\/p>\n\n\n\n

Det \u00e4r<\/em> en osynlig<\/strong> sjukdom, det kan<\/em> bli allvarligt och det g\u00e5r inte att j\u00e4mf\u00f6ra med kvinnor (ens m\u00e4n) som f\u00e5r SLE i de flesta fall. Inte ens v\u00e5rden uppm\u00e4rksammar ju detta, eller har kunskap om! S\u00e5klart specialistl\u00e4karna, tack \u00e5 lov, men inte andra yrkesgrupper eller gemene man. Eller patientorganisationer.<\/p>\n\n\n\n

\"\" — Talande om osynligheten, det alla ser st\u00e4mmer d\u00e5ligt med sanningen<\/figcaption><\/figure>\n\n\n\n
Frustrationen av att bara kunna predika<\/strong> om den h\u00e4r skitsjukdomen f\u00f6r att f\u00f6rs\u00f6ka sprida lite ”awareness” – uppm\u00e4rksamhet… (jo, jag fattar att jag uppfattas som tjatig, som efter \u00f6ver 12 \u00e5r ens f\u00f6rs\u00f6ker). Det tar ju aldrig slut!<\/p>\n\n\n\n
Jag hoppas och tror att Alva vet vilken k\u00e4mpe hon m\u00e5ste <\/em>vara och \u00e4r<\/em>. \u2665\ufe0f
Till er friska, avslutar jag som vanligt med saknade Bodil Malmsten: <\/p>\n\n\n\n
***” Att vara frisk \u00e4r att vara lycklig. Synd bara att jag inte visste om det. Till dig som \u00e4r frisk – vet om det! ” <\/p>\n\n\n\n***
***As simple as that! Och ha empati f\u00f6r b\u00f6velen, det \u00e4r en fin egenskap. Punkt.<\/p>\n\n\n\n***
***1 timme senare: <\/p>\n\n\n\n***
Ovanst\u00e5ende inl\u00e4gg h\u00f6r till dem jag alltid kastar i papperskorgen i vanliga fall. Jag f\u00e5r d\u00e5ligt samvete \u00f6ver att jag ”klagar”, att jag inte uppm\u00e4rksammar allt positivt, att jag inte bara skriver om det. R\u00e4dslan av att k\u00e4nna sig obekv\u00e4m, tjatig, negativ kommer v\u00e4ldigt mycket tidigare \u00e4n ett brev p\u00e5 posten. <\/p>\n\n\n\n
Till alla barn som k\u00e4mpar och har sv\u00e5ra skov, \u00e4r p\u00e5 sjukhus eller m\u00e5ste ta prover en g\u00e5ng i veckan: Det \u00e4r inte ett d\u00e5ligt liv, det \u00e4r en d\u00e5lig dag\/dagar. Det kommer b\u00e4ttre. <\/p>\n\n\n\n
***Till mig sj\u00e4lv: jobba p\u00e5 sj\u00e4lvk\u00e4nslan, du! <\/p>\n","protected":false},"excerpt":{"rendered":"***
Vissa dagar allts\u00e5, s\u00e5 blir frustrationen f\u00f6r stor. Jag klarar mycket och f\u00f6rtr\u00e4nger mer och mer ”jobbigt” senaste \u00e5ren (det verkar vara melodin), men ibland rinner det liksom \u00f6ver. Det kan vara t ex att jag ser ytterligare ett barn (med barn menar jag oftast f\u00f6re pubertet) som \u00e4r j\u00e4ttesjuk eller d\u00f6r, f\u00f6retr\u00e4desvis i USA, […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"jetpack_publicize_message":"","jetpack_is_tweetstorm":false,"jetpack_publicize_feature_enabled":true},"categories":[6,811,21,25],"tags":[996,916,882,995,863,653],"jetpack_publicize_connections":[],"yoast_head":"\nHej fredag! - Vad \u00e4r SLE sjukdom? - Lupusmammans SLE blogg<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lupusmamman.se\/blogg\/hej-fredag\/\" \/>\n<meta property=\"og:locale\" content=\"sv_SE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Hej fredag! - Vad \u00e4r SLE sjukdom? - Lupusmammans SLE blogg\" \/>\n<meta property=\"og:description\" content=\"Vissa dagar allts\u00e5, s\u00e5 blir frustrationen f\u00f6r stor. 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