Fakta pediatrisk SLE - Vad \u00e4r SLE sjukdom? - Lupusmammans SLE blogg<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lupusmamman.se\/blogg\/fakta-behandling-hos-barn\/\" \/>\n<meta property=\"og:locale\" content=\"sv_SE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Fakta pediatrisk SLE - Vad \u00e4r SLE sjukdom? - Lupusmammans SLE blogg\" \/>\n<meta property=\"og:description\" content=\"Detta har vi f\u00e5tt inpr\u00e4ntat sen barnsjukhustiden, vikten av att justera cortison och cellgift i ett s\u00e5 tidigt skede som m\u00f6jligt, f\u00f6r att begr\u00e4nsa omfattningen av f\u00f6rst\u00f6rda organ (eller leder) och det \u00e4r s\u00e4rskilt viktigt f\u00f6r just barn som har SLE. 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L\u00e4get;. fingret \u00e4r of\u00f6r\u00e4ndrat sen senaste inl\u00e4gg, men hon l\u00e4gger om det fint sj\u00e4lv tills hon f\u00e5r komma till handkirurgen (remiss skrevs samma dag handkirurgen rekommenderade v\u00e5rdcentralen, fr\u00e5n reuma). Uppdatering<\/em>; fick kallelse idag till m\u00e5ndag 2 juli, till jourl\u00e4kare. Blir l\u00e5ng tid att v\u00e4nta med \u00f6ppet s\u00e5r…??I vissa l\u00e4gen, som hos kroniskt sjuka, b\u00f6r de lyssna mer p\u00e5 patienten… inte alltid patienten orkar h\u00e4vda\/f\u00f6rklara\/kriga, \u00e5tminstone vill inte Alva till sjukan mer \u00e4n i n\u00f6dfall. \u00c5terst\u00e5r mycket att \u00f6nska i kontakten med vuxenv\u00e4rlden – kronisk sjukdom.<\/p>\n

V\u00e4ntar fortfarande p\u00e5 gastroskopi och kapselnedl\u00e4ggning, hoppas det blir relativt snart. Vi skulle j\u00e4tteg\u00e4rna ha semester och sommarledigt fr\u00e5n sjukhuset … \u00c4ven provtagning i \u00f6vermorgon och l\u00e4karbes\u00f6k i juli p\u00e5 reuma pga alla j\u00e4kla symptom.Fina midsommartjejer???<\/p>\n","protected":false},"excerpt":{"rendered":"