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{"id":2084,"date":"2016-09-28T09:16:42","date_gmt":"2016-09-28T09:16:42","guid":{"rendered":"https:\/\/lupusmamman.wordpress.com\/2016\/09\/28\/nar-varfor-hur\/"},"modified":"2016-09-28T09:16:42","modified_gmt":"2016-09-28T09:16:42","slug":"nar-varfor-hur","status":"publish","type":"post","link":"https:\/\/lupusmamman.se\/blogg\/nar-varfor-hur\/","title":{"rendered":"N\u00e4r? Varf\u00f6r? Hur?"},"content":{"rendered":"N\u00e4r<\/b> ska man ta kontakt med ”v\u00e5rden”? Efter 2 veckor? Efter 3 dagar? Och till vem? V\u00e4grar fortfarande akuten in i det absolut l\u00e4ngsta, det \u00e4r ett helvete. Hatar systemet att inte kunna ringa upp och r\u00e5dg\u00f6ra n\u00e4r akuta symptom och efterf\u00f6ljande fr\u00e5gor kommer. Nej, d\u00e5 ska man v\u00e4nta en dag tills n\u00e5gon ringer upp. Sen kommer \u00e4nd\u00e5 svaret; vi har inga tider, \u00e5k till akuten. M\u00e5ste ha en plan f\u00f6r framtiden (och den f\u00e5r vi nog klura ut sj\u00e4lva).<\/p>\n
Varf\u00f6r<\/b> forts\u00e4tter det onda? Trots h\u00f6gdos cellgifter och massor med andra mediciner? Varf\u00f6r r\u00e4cker det inte? <\/p>\n
Hur<\/b> l\u00e4nge ska det p\u00e5g\u00e5, dessa s k skov<\/i>? Det flyter ju i varandra, kan g\u00e5 en<\/b> dag utan sm\u00e4rta, feber, utslag eller annat, en dag! Ska det inte bli l\u00e4ngre perioder? <\/p>\n
Enda stunden av sm\u00e4rtfrihet och lycka \u00e4r n\u00e4r hon sitter p\u00e5 h\u00e4stryggen. \u00c5 d\u00e4r kan hon ju inte sitta j\u00e4mt ?<\/p>\n
F\u00f6r egen del, n\u00e4r det ofta f\u00f6rekommande \u00e4r en tuff tillvaro med oro och \u00e5ngest, vad g\u00f6ra? Jag har redan g\u00e5tt 10-20 g\u00e5nger hos en underbar psykolog f\u00f6r n\u00e5gra \u00e5r sen, jag vet allt med att det inte \u00e4r mitt fel att Alva blev sjuk, att v\u00e4nners svek inte var pga mig utan dom sj\u00e4lva etc. Jag har stor kunskap om hur mitt egna psyke fungerar vid press, \u00e4r j\u00e4kligt envis \u00e5 tjurskallig. Innan, p\u00e5 barnsjukhuset hade jag tillg\u00e5ng till kurator. Ska man beh\u00f6va nu, resten av livet, g\u00e5 till en kurator eller psykolog vid alla bakslag\/skov\/trauman som regelbundet h\u00e4nder? Jag tycker det k\u00e4nns som det r\u00e4cker med djur\/natur och n\u00e5gra v\u00e4nner som lyssnar, men funderingen kom upp, n\u00e4r jag idag fick uppmaningen att s\u00f6ka hj\u00e4lp innan jag kraschar. Den hj\u00e4lpen finns ju inte i nul\u00e4get. K\u00e4nner mig n\u00e4stan lite skuldbelagd. Jag \u00f6nskar<\/i> dock, som skrivet i m\u00e5nga inl\u00e4gg, att det fanns resurser i samh\u00e4llet f\u00f6r st\u00f6d i hur man brottas med allt som en kronisk diagnos inneb\u00e4r; skuld, frustration, f\u00f6rtvivlan, hat, ilska \u00f6ver det or\u00e4ttvisa i att just hon drabbades. Att bli behandlad p\u00e5 ett v\u00e4nligt vis inom v\u00e5rden (eller av en kompis\/familjemedlem) kan ju g\u00f6ra hela ens dag, f\u00e5 oro att minska. Det beh\u00f6ver och kan<\/i> ofta inte g\u00f6ras mer \u00e4n s\u00e5. Men visst, jag erk\u00e4nner att jag \u00e4r sjukt d\u00e5lig p\u00e5 att bry mig om mig sj\u00e4lv och<\/b> inser v\u00e4l n\u00e5nstans att det var av v\u00e4lmening. <\/p>\n
<\/a>Enligt en helt tillf\u00f6rlitlig unders\u00f6kning.<\/p>\n
Men st\u00e4mmer v\u00e4ldigt bra faktiskt, jag \u00e4r s\u00e4kert unik.?<\/p>\n","protected":false},"excerpt":{"rendered":"
N\u00e4r ska man ta kontakt med ”v\u00e5rden”? Efter 2 veckor? Efter 3 dagar? Och till vem? V\u00e4grar fortfarande akuten in i det absolut l\u00e4ngsta, det \u00e4r ett helvete. Hatar systemet att inte kunna ringa upp och r\u00e5dg\u00f6ra n\u00e4r akuta symptom och efterf\u00f6ljande fr\u00e5gor kommer. Nej, d\u00e5 ska man v\u00e4nta en dag tills n\u00e5gon ringer upp. […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"jetpack_publicize_message":"","jetpack_is_tweetstorm":false,"jetpack_publicize_feature_enabled":true},"categories":[6,31,32,33,20,21,25],"tags":[362],"jetpack_publicize_connections":[],"yoast_head":"\nN\u00e4r? Varf\u00f6r? 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