Lyssnar p\u00e5 Sommar - Vad \u00e4r SLE sjukdom? - Lupusmammans SLE blogg<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lupusmamman.se\/blogg\/lyssnar-pa-sommar\/\" \/>\n<meta property=\"og:locale\" content=\"sv_SE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Lyssnar p\u00e5 Sommar - Vad \u00e4r SLE sjukdom? - Lupusmammans SLE blogg\" \/>\n<meta property=\"og:description\" content=\"Gunhild Stordalen – ung kvinna som har diffus kutan systemisk skleros. Den mest aggressiva varianten av sjukdomen, som angriper huden innan den sprider sig till inre organ och g\u00f6r bindv\u00e4ven stel och h\u00e5rd. Grinade mycket \u00f6ver det or\u00e4ttvisa i livet, det faktum att unga f\u00e5r sv\u00e5ra sjukdomar.. 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Lars Lerin – favorit, underbar, konstn\u00e4r, f\u00f6rfattare, fr\u00e5n dec 2015. http:\/\/sverigesradio.se\/sida\/avsnitt?programid=2071<\/a><\/p>\n

N\u00e4r jag var liten lyssnade mormor Hilda alltid p\u00e5 Sommar p\u00e5 landet, i hammocken, ur en transistorradio. Om n\u00e5gra dagar \u00e4r det 26 \u00e5r sen hon dog \u00e5 jag saknar henne massor\u2764\ufe0f<\/p>\n

Alva somnade om efter morgonmedicinen, hon hade v\u00e4ldigt ont i fingrar och en handled ? I fredags var det \u00e4ntligen cortisons\u00e4nkning till 6,25 mg, om en m\u00e5nad 5 mg. Gissa om jag h\u00e5ller tummen f\u00f6r att det inte ska bli bakslag.. Det har tagit l\u00e5ng tid, fr\u00e5n 30 mg. Facebook visar hemska minnen fr\u00e5n sommaren 2014, n\u00e4r hon l\u00e5g p\u00e5 sjukan 5 veckor med h\u00f6g feber, s\u00e5r, propp, behandlingar, provtagningar varje dag p\u00e5 narkosen och slutligen en tappad lillfingertopp, 15 m\u00e5nader senare (?). S\u00e5 gissa om man uppskattar lyxen av varje dag hemma?<\/p>\n","protected":false},"excerpt":{"rendered":"