Alltid n\u00e4rvarande, vardag som semester - Vad \u00e4r SLE sjukdom? - Lupusmammans SLE blogg<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lupusmamman.se\/blogg\/alltid-narvarande-vardag-som-semester\/\" \/>\n<meta property=\"og:locale\" content=\"sv_SE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Alltid n\u00e4rvarande, vardag som semester - Vad \u00e4r SLE sjukdom? - Lupusmammans SLE blogg\" \/>\n<meta property=\"og:description\" content=\"P\u00e5 t\u00e5get fr\u00e5n Malm\u00f6 nu. Minisemestern slut, tyv\u00e4rr. F\u00f6rs\u00e4kringskassan ringde ig\u00e5r, jag svarade p\u00e5 fr\u00e5gor i 25 minuter. Jobbiga fr\u00e5gor om Alvas funktionsneds\u00e4ttningar, liv, symptom. 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F\u00f6rs\u00f6ker v\u00e4lja att se det hon kan och \u00e4r bra p\u00e5 i detta inl\u00e4gg, inte det hon har sv\u00e5rt med??<\/p>\n

Hon \u00e4r en grym kock, \u00e4lskar mat, har underbar, sarkastisk humor, \u00e4r fantastisk med djur av alla slag, \u00e4lskar att resa, bada, baka, shoppa, kan g\u00e5 p\u00e5 m\u00e4ssor och h\u00e4stloppisar forever, \u00e4r envis som tusan, ger de mysigaste kramarna och klagar aldrig n\u00e4r hon \u00e4r p\u00e5 sjukhus, tar prover om och om igen. Finns hur mycket som helst att rada upp av det som hon kan ocks\u00e5<\/b>. V\u00e4ljer att se det friska, inte det sjuka. F\u00f6rutom vid kontakterna med F\u00f6rs\u00e4kringskassan etc, n\u00e4r man m\u00e5ste<\/b> rannsaka sv\u00e5righeterna och begr\u00e4nsningarna. Det tar verkligen p\u00e5 psyket, jag blir orolig f\u00f6r framtiden och k\u00e4nner mig alltid ”skyldig” p\u00e5 n\u00e5t konstigt vis, som om jag har gett henne en kronisk sjukdom med vilje liksom. Inget kunde vara mer felaktigt s\u00e5klart. F\u00f6rs\u00e4kringskassan \u00f6nskade att l\u00e4karintygen skulle vara mer inneh\u00e5llsrika\/detaljerade, men jag vet ju hur lite tid som finns f\u00f6r administrativt arbete. <\/p>\n

$\"\"$ <\/a><\/p>\n","protected":false},"excerpt":{"rendered":"