{"id":1704,"date":"2016-07-02T07:30:32","date_gmt":"2016-07-02T07:30:32","guid":{"rendered":"https:\/\/lupusmamman.wordpress.com\/?p=1704"},"modified":"2016-07-02T07:30:32","modified_gmt":"2016-07-02T07:30:32","slug":"a-story-worth-sharing%f0%9f%92%9c","status":"publish","type":"post","link":"https:\/\/lupusmamman.se\/blogg\/a-story-worth-sharing%f0%9f%92%9c\/","title":{"rendered":"A story worth sharing?"},"content":{"rendered":"<p>\u00c5r 2008, n\u00e4r Alva haft diagnos 1 \u00e5r ungef\u00e4r \u00e5 var som s\u00e4mst med njurp\u00e5verkan, s\u00e5 s\u00e4nde SVT en dokument\u00e4r som jag s\u00e5g d\u00e5. Med enorm r\u00e4dsla, hj\u00e4rtklappning och \u00e5ngest, eftersom det inte gick bra. Det var ingen happy ending. Vet inte hur jag tordes uts\u00e4tta mig f\u00f6r att se dokument\u00e4rer som var s\u00e5 allvarliga, men har ju aldrig varit en person som sticker huvudet i sanden, trots att det \u00e4r skonsammare f\u00f6r stunden. Hela livet var som en film d\u00e5, d\u00e4r jag stod bredvid \u00e5 bara iakttog allt. Som en robot tog jag in information om nefrit, d\u00e5liga v\u00e4rden, biopsi, sv\u00e5ra ord p\u00e5 latin jag tidigare bara skrivit om, inte genomlevt. Jag vidh\u00e5ller att det m\u00e5ste vara det st\u00f6rsta &#8221;straffet&#8221;, att l\u00e5ta ens eget barn uts\u00e4ttas f\u00f6r en s\u00e5 sv\u00e5r sjukdom. Varf\u00f6r i helvete kunde det inte ha varit jag ist\u00e4llet? Eller n\u00e5n elak typ, allra helst..<\/p>\n<p>Dokument\u00e4ren gjordes av mamman och huvudrollsinnehavaren sj\u00e4lv, sk\u00e5despelerskan N&#8217;Deaye (som hade SLE). \u00d6nskar s\u00e5 att det gick att se dokument\u00e4ren &#8221;The wolf inside&#8221; igen, men har inte lyckats.&nbsp;<a href=\"http:\/\/www.dailymail.co.uk\/home\/you\/article-1064312\/Actress-NDeaye-Bas-long-battle-wolf.html\">http:\/\/www.dailymail.co.uk\/home\/you\/article-1064312\/Actress-NDeaye-Bas-long-battle-wolf.html<\/a><\/p>\n<p>????<\/p>\n<p>\u00c5ter igen en mamma jag k\u00e4nner med och f\u00f6r, deras mor-dottersk\u00e4rlek lyser starkt igenom i filmen.?<a href=\"http:\/\/web.telia.com\/~u92804766\/index.htm\">http:\/\/web.telia.com\/~u92804766\/index.htm<\/a><\/p>\n<p>#lupusawareness #overcomelupus #fightformydaughter #fucklupus<\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u00c5r 2008, n\u00e4r Alva haft diagnos 1 \u00e5r ungef\u00e4r \u00e5 var som s\u00e4mst med njurp\u00e5verkan, s\u00e5 s\u00e4nde SVT en dokument\u00e4r som jag s\u00e5g d\u00e5. Med enorm r\u00e4dsla, hj\u00e4rtklappning och \u00e5ngest, eftersom det inte gick bra. Det var ingen happy ending. Vet inte hur jag tordes uts\u00e4tta mig f\u00f6r att se dokument\u00e4rer som var s\u00e5 allvarliga, [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"jetpack_publicize_message":"","jetpack_is_tweetstorm":false,"jetpack_publicize_feature_enabled":true},"categories":[32,21],"tags":[63],"jetpack_publicize_connections":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v19.10 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>A story worth sharing? - Vad \u00e4r SLE sjukdom? - Lupusmammans SLE blogg<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lupusmamman.se\/blogg\/a-story-worth-sharing\ud83d\udc9c\/\" \/>\n<meta property=\"og:locale\" content=\"sv_SE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"A story worth sharing? - Vad \u00e4r SLE sjukdom? - Lupusmammans SLE blogg\" \/>\n<meta property=\"og:description\" content=\"\u00c5r 2008, n\u00e4r Alva haft diagnos 1 \u00e5r ungef\u00e4r \u00e5 var som s\u00e4mst med njurp\u00e5verkan, s\u00e5 s\u00e4nde SVT en dokument\u00e4r som jag s\u00e5g d\u00e5. 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